About The Essey Awards
1995, Richard "Dick" Essey founded the Greater Bay Area Chapter of The
ALS Association in honor of his wife, Sheila Essey, and in recognition
of the needs of people with ALS and their caregivers. In 2010, the
chapter merged with Greater Los Angeles, and became The ALS Association
Golden West Chapter. The Essey family is proud to support the mission
and vision of The ALS Association and the Golden West Chapter, as well
as to fund the annual Sheila Essey Award for ALS Research,
presented at American Academy of Neurology’s annual meeting. To honor
the family's ongoing commitment, the Golden West Chapter created The Essey Awards,
to be given annually to individuals and organizations whose outstanding
contributions and efforts have advanced the search for effective
treatments and cures for ALS. Congratulations to this year's Essey Award Honorees!
Kathy Beallo, motivated by a deep commitment to helping others, has made a generous and important commitment to the Chapter in memory of her late husband, Bob. Kathy’s leadership gift and investment in our vision–creating a world without ALS–serves as an example to all and is a lasting tribute to the life and legacy of Dr. Robert Beallo.
Kathy has remained undeterred in her commitment to the Chapter's programs of care and its search for effective treatments and cures. The Golden West Chapter is deeply grateful for Kathy’s impactful “Never Give Up” spirit, which is helping to fuel our mission and vision.
Fred Noteware will be presented with the Dean & Kathleen Rasmussen Advocate of the Year Award for his tireless and steadfast efforts to educate and influence public policy in California in support of the ALS community. His firm, Noteware and Rosa Government Relations, has represented the ALS community for more than a decade and has achieved unprecedented success in terms of state funding for ALS research and our wraparound model of care. Fred’s actions, in partnership with Dean Rasmussen and the late Jim Barber, launched the California ALS Research Summit and has ensured better outcomes for people diagnosed with ALS in California.
Widely recognized at the State Capitol, Fred Noteware is a veteran lobbyist with more than three decades of experience drafting legislation, developing strategy, negotiating with policymakers, and testifying before legislative committees. His advice is routinely sought from legislators, staff, administration officials, and “third house” colleagues. He has a precise understanding of the rules governing the legislative process, and a keen insight into the intricacies of policy making.
Noteware & Rosa Government Relations is among the Capitol’s most respected firms, given its commitment to ethics, respect for the institution of the Legislature itself, and attention to detail.
Before founding the firm in 1995, Fred lobbied for the California Medical Association, where he focused on the issues of allied health, prescription drugs, public health, and HIV/AIDS treatment. He also assisted CMA on budget-related issues, managed care, and Medi-Cal. His key role in fighting legislation allowing optometrists to prescribe drugs earned a distinguished service award from the California Association of Ophthalmology.
After graduating from the University of California at Davis in 1978, Fred worked in Washington DC as Legislative Assistant to California Congressman Norm Shumway. He returned to California in 1980, serving as State Senator Ken Maddy’s chief legislative coordinator. In 1983, Governor George Deukmejian appointed him Deputy Secretary for Legislation in the California Health and Welfare Agency, where he was the Secretary’s lobbyist and coordinated activities among eleven different constituent departments, the Department of Finance and the Governor’s Office. In 1985, Fred became the Director of Programs and the Director of Public Affairs for the California Housing Finance Agency (CHFA), where he managed program personnel for underwriting, originating, and servicing single-family and multi-family loans.
Noteware & Rosa is a diversified advocacy firm with four full-time lobbyists. While committed to a robust list of health care clients along with Partner Kris Rosa, Noteware & Rosa also represents numerous non-profit and corporate interests.
Fred and his wife live in Sacramento. He is tuba player and an Elder in the Presbyterian Church (USA).
Mitsubishi Tanabe Pharma America
Mitsubishi Tanabe Pharma America, Inc. (MTPA) is committed to providing significant scientific advances designed to provide important treatments to those facing serious and life-threatening diseases. MTPA officially launched in 2016 with the ambitious goal of developing therapies for some of the most difficult-to-treat diseases, including amyotrophic lateral sclerosis (ALS).
We give our Essey Commitment to Cures Award to individuals and companies who champion ALS drug discovery and development in relentless pursuit of treatments and cures for people with ALS and related diseases. We can think of no one more deserving than the leadership and employees of Mitsubishi Tanabe Pharma America to receive this award at our 2019 Champions for Care and a Cure event. Their extensive efforts and collaboration on research, clinical trials, education and distribution to bring Radicava® and future treatments and cures to the ALS Community are inspiring, encouraging, and eye-opening.
The ALS Association Golden West Chapter’s mission is to discover treatments and cures for ALS, and to serve, advocate for and empower people affected by ALS so they can live their lives to the fullest.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal neurodegenerative illness that affects nerve cells in the brain and spinal cord. Everything we do advances the search for effective treatments and cures for ALS. The Chapter currently serves more than 1,800 people with ALS and their families in 31 counties in California and the state of Hawaii.
Proceeds from Champions for Care and a Cure will provide critical funding for The ALS Association Golden West Chapter’s mission priorities in the areas of care services, public policy, and cutting edge ALS research—all of which are essential to achieving our vision: creating a world without ALS.
Director of Special Events